Happy New Year! Almost There!




Happy New Year. We hope you all had a great holiday. We spent our holidays with Uncle Fuad and Aunt Terry in Atlanta. We lit sparklers to convince the sun to stay on Winter Solstice, we built gingerbread houses, we saw a Christmas play, we opened presents, we ate a little too well and best of all hung out with family and were showered with lots of love!


Sparklers on Winter Solstice

Great Time with Dad


Gingerbread Houses


Christmas Dinner


Thank you Nacho and Dagmar for our new Olaf Blanket

Nina and Wes both left home. Layla and I are back in Boca Raton. We downsized to a studio at the Residence Inn close to the clinic. It's a comfortable 500 square feet space that has a kitchen and everything else we need. The hotel even has a small gym and I started using the treadmill again as a way to start building intentions for 2019.

Nina trained me well before she left

Next week is our 12th week of treatment. We are scheduled for a pet scan to validate the tumor markers progress and see how much cancer is left (if any). Based on our current tumor markers, we are probably still looking at two more weeks of treatment but the results of the pet scan could change that.
Layla has been feeling a lot better in general with better appetite and good energy. We went to the movies and watched "On the Basis of Sex." It's a very inspiring movie.

At the movies

Highly Recommended Movie

We also stopped by the Wyndham in Pompano Beach to pick up some packages from Layla's friends.

Thank you Tricia from"We Ate Well Food Tours" in McKinney, TX

Thank Nathalie for the natural moisturizer



Tumor Marker Update

The Tumor markers are still heading in the right direction. We've had a couple of readings since our last update. I added our remission goal, all tumor markers need to be in the thirties. We are lucky in the sense that Layla's tumor markers track accurately with the cancer. This is not the case for all cancer patients.


Date                    CA 125      Ca 27.29       Ca 15-3
10/15/18             1767            1511               821
10/29/18              898             1636               968     (following 2 weeks of treatment)
11/8/18                245              742                498     (following 4 weeks of treatment)
11/19/18               89               389                192     (following the immunotherapy procedure)
12/3/18                 64               338                143    (following 6 weeks of treatment)
12/10/18               59               252                101     (following 7 weeks of treatment)
12/17/18                49                222                 104     (following 8 weeks of treatment)
12/27/18                37                171                  81      (following 9 weeks of treatment)
01/02/19                36                142                  69      (following 10 weeks of treatment)
01/07/09                35                145                  60      (following 11 weeks of treatment)
 % Drop                98               90.4              92.7   (%Change from start of treatment)
Goal                   <35                 <38               <32


Plumfund Expenditures Update:

Our Plumfund is still active. As promised, here is our latest report the expenditures:

Total money in Plumfund as of 1/1/19: $122,533
Net amount available: $118,785 (and $200 pending receipt). This takes into account credit card fees withheld by the account.
Amount expended through 11/30/18: $83746.13
Dr. Rosenberg Treatment (11/30/18 through 12/31/18): $11,000
Medicine (11/30/18 through 12/31/18): $2494
Total medical spent (11/30/18 through 12/3118): $13494
Balance as of 1/1/19: $21544.87

Cousin Armelle on Christmas Day at Crystal Cove

Yoga Time for Nathalie

Comments

  1. The numbers are incredibly positive! Good work to all of you. Happy New Year!!

    ReplyDelete
  2. Great news . it seems you had great time on Christmas and new year. Hope 2019 would be the best to all of you .lot of kisses and love and hugs ❤❤❤

    ReplyDelete
  3. Love and miss you all. Layla and your entire family are an inspiration to us all. You’ve filled your journey with the most wonderful memories and it seems have started some new traditions. Great Christmas card photo of the four of you. Rudolph is looking quite cute. 🛷

    ReplyDelete
  4. What a wonderful way to start the 2019!

    ReplyDelete
  5. Great news! Amazing numbers! I hope 2019 will be filled with happiness and bring success and desired results for you. Love you.

    ReplyDelete
  6. So happy to hear you are doing well - I enjoyed seeing the family pictures -
    I love my Team Layla T-Shirt - Each day I work at being Layla Strong <3

    ReplyDelete

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