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Showing posts from January, 2019

COMPLETE REMISSION!!!!!! (Update provided 8 months later)

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Our new pet outside our hotel room Update: We are thankful to our medical team , our complete remission lasted 6 months. We are continuing treatment with Doctors Kleef, Williams and Rosenberg.  Please refer to updated blogs! We are in disbelief. Four months ago, I broke the news to Layla about the scan results showing that the cancer was now in her liver with too many lesions to count. It was a miserable day with lots of tears and pain.  Layla looked at me and asked: "Does anybody ever come back from mets in liver?, I am not ready to die!". The odds are super slim. While we were all trying to come to terms with the new escalated level of the disease, Nina was already looking at all the options that she knew of and what was the best way to turn this nightmare into a blessing in disguise. With the metastatic disease now in her liver, Layla became a candidate for the OX40 Intra-Tumoral injection (Stanford Study) but needed treatment to shrink the extent of the lesions

Happy New Year! Almost There!

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Happy New Year. We hope you all had a great holiday. We spent our holidays with Uncle Fuad and Aunt Terry in Atlanta. We lit sparklers to convince the sun to stay on Winter Solstice, we built gingerbread houses, we saw a Christmas play, we opened presents, we ate a little too well and best of all hung out with family and were showered with lots of love! Sparklers on Winter Solstice Great Time with Dad Gingerbread Houses Christmas Dinner Thank you Nacho and Dagmar for our new Olaf Blanket Nina and Wes both left home. Layla and I are back in Boca Raton. We downsized to a studio at the Residence Inn close to the clinic. It's a comfortable 500 square feet space that has a kitchen and everything else we need. The hotel even has a small gym and I started using the treadmill again as a way to start building intentions for 2019. Nina trained me well before she left Next week is our 12th week of treatment. We are scheduled for a pet