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Showing posts from September, 2019

Vienna in the Fall

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Vienna in the Fall Our last update was on January 17, 2019 where Layla was declared in remission with no evidence of disease. Clinical remission is defined when the PET/CT scan does not detect any cancer.  Unfortunately remission does not mean cancer free. We continued treatment in Florida by tapering off the low dose chemotherapy regimen Layla was on from weekly to every other week to every three weeks and then once a month. Layla’s tumor markers began rising again in April.  The cancer has mutated and developed resistance to the existing therapy.  We have tried multiple adjustments to bring it back down but none were successful. In July, Layla had a pet scan that showed active cancer in the liver and the bones. The extent was less than last year but enough to change the course of treatment. We still focused on immunotherapy as a long-term cure so we consulted with Dr. Williams who is still honing down the immunotherapy OX40 injections and he proposed a multi injection appr