One Last Update😢
Although many of you probably already know the ending of our update, I feel it is important to explain how we got from normal treatment in Vienna to losing our Layla in three weeks, since you shared our journey. We left Vienna on Thursday, February 27 to Berkeley, California with the promise of a new treatment, Side Effect Free (SEF, pronounced 'safe') Chemo. Due to several immune related adverse events and other challenges, we needed to pause immunotherapy for several months and we had been assessing SEF chemo as a non-immunotherapy backup plan should this ever happen. Our time in the San Francisco Bay Area was very short lived as Layla was getting very weak and was developing upper respiratory issues- with symptoms progressing significantly each day. She had developed Lymphangiosis carcinomatosa, a very rare form of metastasis from breast cancer that spreads to the pulmonary lymphatic system and eventually severely impacts the lungs. We also learned that the pulmonary