If It Ain't Broke...

Duck or Duck lookalikes Residents in the Parking 

This is week 7 of treatment. We have 5 more to go (we think) before we get to a maintenance phase of every other week for a period of time followed by once a month till we have a comfortable period of no evidence/stable disease.

Our treatment this week consisted of Vitamin C and Hyperbaric Oxygen. Chemotherapy which was scheduled for Tuesday is moved to Thursday as Layla's blood count is still low. The plan is to boost the red and white count through some medications meanwhile. The chemo dosage will also be lowered to 25% of the initial start. This is still low dose chemotherapy. We started out with 10% of the typical high dose that is administered at standard practice.

At Treatment
Grocery Shopping


Highlights of the Week

Julie and Whitney, Layla's friends from the study abroad program in France visited her this weekend and stayed in the same resort we are at. They both live in New York. We (yes, me too, I got to hang out with the young kids!) spent Saturday and Sunday catching up. Layla was exhausted on Thursday and Friday. Her blood count is really low (both red and white) which is resulting in very low stamina. Their visit energized her and brought back lots of memories and smiles all around and I really enjoyed getting to know Julie and Whitney. They are smart, sweet, caring and best of all, they love Layla. What is amazing about Layla, is she manages to make friends everywhere she lands and manages to keep in touch with all of them through the years and the distances.

Whitney, Layla and Julie on our Balcony
Hanging Out at the Pool

Monday morning, I got a phone call from the front desk asking me whether I received flowers. I checked the front door and Idid not see anything. When I said no, she asked me whether I am expecting flowers?. Needless to answer such stupid questions, we received beautiful flowers a few minutes later. It was from Julie and Whitney. They visit, hang out and send us flowers too!



Taurolidine is back! The clinic has been out of Taurolidine for three weeks so Layla's treatment was mainly Vitamin C and chemotherapy. The clinic received a shipment on Wednesday so we will stay longer to infuse at least a bag and some on Thursday following chemotherapy.

We finished "The Marvelous Mrs. Maisel" and we highly recommend it. We started Sharp Objects (HBO). Layla and I have both read the book. We still binge watch Project Runway and a crazy reality TV show called "90 day Fiance".


Tumor Marker Update

The Tumor markers are still heading down in the right direction!
Date                     CA 125       Ca 27.29        Ca 15-3
10/15/18             1767            1511               821
10/29/18              898              1636             968     (following 2 weeks of treatment)
11/8/18                245              742                498     (following 4 weeks of treatment)
11/19/18               89               389                192     (following the immunotherapy procedure)
12/3/18                 64               338                143    (following 6 weeks of treatment)
12/10/18               59               252                101     (following 7 weeks of treatment)

 % Drop               96.7%        83.3%             87.7%   (% Change from start of treatment)

Go Team Layla!
Marla # marlagpilates#LongBeach, best Pilates instructor!
Wes and Chloe- Where is my T-shirt??

Good Job Cathy!

Cousin Raphael . Still Working on a T-Shirt for Woody

With lots of love from the gang!!




Location: Pompano Beach, FL, USA

Comments

  1. NabilaDecember 13, 2018 at 1:01 PM

    Courage! Sending you tons of prayers and love 😘😘

    ReplyDelete
  2. UnknownDecember 16, 2018 at 10:19 AM

    big hug and kisses with lots of love to all the gang

    ReplyDelete

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